My doctor at the time told me I had to get worse to get better so I was just fighting the fight. I was living in Reno at my adorable little house while my husband was in school and working 60+ hours each week. I was alone and spent most of that first month on the toilet or in bed. I lost 10 pounds almost right away and was so weak I couldn't shower on my own. I remember talking to my one day and I told her how upset my stomach was. She was concerned and offered to pay for some groceries for me to help soothe my stomach. I told her finances were not the problem, but making it to the grocery store was the real problem. I couldn't stand or walk much less drive! I was sick and not safe to be home alone.
|Me with my amazing and supportive husband <3|
I also started physical therapy in my house from a local home health company (Yes, this exists and it is amazing!). I did simple exercises that helped me to regain my muscle strength. I had a few sad moments in my early treatment, like my only day Christmas shopping was spent in a wheelchair getting all sorts of judgemental looks. I also did not have my husband around when I was so nervous about my picc line procedure because he was still in Peru. All in all, I made it through the first two months.
Justin came back home on Christmas Eve and he spent quite a few days getting used to my new medicine routine. It was much more complex than my original few pills each day. I now had a nurse visiting me each week, I did infusions in my house and I was able to be a little more active. We had a family discussion and all concluded that I made so much progress during the time Justin was in Peru that I needed to stay living with my parents where there were so many more family members around to keep and eye on me and help me stay on track with my medications.
|This is my shower chair. I am in love. Ha ha!|
The biggest change in my life, above all, is the mentality to feel productive after doing only one thing each day. Sometimes that is going and walking around Wal-Mart or sitting in a coffee shop with my mom and talking, or on a really good day doing a craft project. It is no longer a reality to do more than one thing each day! This is incredibly humbling~