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November 30, 2011

All I Want For Christmas is...My Lymph System to Empty

I recently saw my specialist in the Bay Area and was relieved with what he said.  He told me I was making good progress and had only one big thing holding me back, my lymphatic system. He told me my lymphatic system is completely congested and I need to work on emptying it...if I can clear it out I will be feeling much better.  I was so happy to hear this and left the appointment with a few things to do on my part.

1. Start stretching/exercising every day, but don't let my heart rate exceed a certain number to avoid the Lyme from crossing blood brain barrier.

2. Take all sorts of new homeopathic meds to help clean out my system

3. Continue infrared sauna (Did I tell you I own one now, I'm using it every other day pretty consistently)

4. Start dry brushing again

5. Change my diet..."if it's white it ain't right" this includes sugar, white flour, basically everything processed.

6. Continue with lymphatic massages

7. Continue drinking lots of water and doing IV hydration

8. Continue with coffee enemas / start colonics

I learned that my lymph system carries out a lot waste my body processes, and with all the drugs I've been on and bugs I've been fighting there is a lot that has been filtered through.  If I can get it to empty from my body I should drop some weight, but more importantly I should have way more energy! With enthusiasm to help my body shed all this crap, I took my measurements all over my body and wrote down my weight when I got home from my appointment and started implementing these changes.  It's been almost two weeks and so far I have noticed no progress.  I've done pretty good on all aspects of the new "protocol" except I am waiting for my heart monitor the be here today to start exercising better because I am scared to death to let the Lyme into my brain. But even cutting out 90% of processed food and sugar over the last week I have gained weight!  Ugh! My doctor assured me I had not gained much fat during this past year, but that it is mostly due to my completely full (think of a full sponge) lymph system. Needless to say I am discouraged, but I will carry on.

All I want for Christmas is my lymph to empty!  Never thought you'd hear that one, huh?!?

November 15, 2011

One Year (and a few days)

I have reached my one year mark of treatment and a diagnosis: November 9, 2011.  This past year has been one I never could have fathomed.  I have received more support from my family than I knew existed, I've been on over 70 different medications, become more in-tune with my body that I ever wanted to be and all to say I still have a long road ahead of me.  Originally, I was told August 2012 as a "done with treatment date", which is perfect because it would be in time for my sisters wedding.  But then, my body didn't totally  cooperate because we weren't able to identify all the bugs that were attacking my system.
Photo courtesy of

The war wages on, and I am trying so hard to be positive.  The truth is I feel a little beat up mostly because I don't see that I am moving forward, instead I feel like I am in a plateau.  I'm struggling with my friendships and I am having a difficult time knowing that this is the plan God has for my life. In Jeremiah 29:11 God promises, "11 For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future."  but a little voice inside of me keeps saying 'what good can come out of this'?

I have struggled with depression for a long time and I find comfort in knowing it is common for people with Lyme disease to also have this diagnosis.  I really think these thoughts are from Satan who is trying to weigh me down.  

I see my specialist this Friday and I am hoping to have a lot of questions answered.  I hope to walk out of there optimistic and with a plan.  

Above all, I guess I am just asking for prayer.  This road is a hard one, but it does not define me.  It cannot define me.  I'm just struggling to know who I am right now.  To my friends, I am sorry to drag you with me or neglect you.  Please know that it is not you but an internal struggle I am having.  I wish I could ignore it or make it go away, but the war wages on.

I started this blog to show you a piece of my life, and I think this entry is the most raw and confused one I've written.  But to you my followers, this is a twist of lyme.